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Newly diagnosed? You’re not alone.
Retinitis pigmentosa (RP) is a group of rare genetic eye conditions that cause gradual vision loss. A diagnosis can feel overwhelming — this page is a clear, jargon-free place to begin: what RP is, why genetic testing matters, and what to ask your doctor.
What is RP?
How the condition progresses and what to expect.
Why genetic testing matters
Knowing your gene shapes which research and trials apply to you.
Questions to ask your doctor
Make the most of appointments with a prepared list.
For education and navigation only — not medical advice.