Stories
Stories like yours
RP looks different for everyone. These are real accounts from people navigating diagnosis, vision loss, and everyday life with retinitis pigmentosa — some curated from elsewhere online, others shared directly with RP Hope.
Vidushee Bala
Hello, this is a test story.
Read story Community storyJane Doe
Hello, this is a test story.
Read story Patient storyRosie
CIRM-funded research helped preserve vision for Rosie Barrero, who was diagnosed with RP as a child and faced losing her sight as a new mother.
University of California TelevisionRead story (opens University of California Television in a new tab)Patient storyVictoria Nolan
A Canadian adaptive rower with retinitis pigmentosa who made the national team and won seven medals, including gold at the World Rowing Championships.
broadeye.orgRead story (opens broadeye.org in a new tab)Patient storyTammy Hawkins
A 27-year-old mother with retinitis pigmentosa channels her diagnosis into advocacy, sharing her story at a Foundation Fighting Blindness “Dining in the Dark” fundraiser.
eyesteve.comRead story (opens eyesteve.com in a new tab)Patient storyJill
Diagnosed with retinitis pigmentosa at 26, Jill writes about finding strength through family and friends while navigating progressive vision loss.
Fight Like a Girl ClubRead story (opens Fight Like a Girl Club in a new tab)Patient storyMolly Burke
Blind since her teens from retinitis pigmentosa, Molly Burke turned being bullied into a platform as a motivational speaker and disability activist.
ChatelaineRead story (opens Chatelaine in a new tab)Patient storyVicky Warren
Known as “the Blind Zumba Lady,” Vicky teaches Zumba and advocates for people who are visually impaired while living with retinitis pigmentosa.
Living the Diagnosis (archived)Read story (opens Living the Diagnosis (archived) in a new tab)Community storyLove My Cane
A vision-loss charity's #LoveMyCane campaign gathers stories from people who moved past embarrassment to embrace their white cane as a tool for independence.
LOOK UKRead story (opens LOOK UK in a new tab)