Who We Are
Hope built on research.
RP Hope is a nonprofit created first and foremost for people living with retinitis pigmentosa. We also support families and caregivers trying to understand the condition, as well as researchers and clinicians working to improve care and develop treatments.
We make complex information easier to understand, organize research gene by gene, and support scientific work aimed at developing effective and accessible treatments.
Mission
To help people with RP and those who support them understand the condition, navigate research, and find relevant resources, while funding work that can move promising treatments closer to patients.
Vision
A future in which every person with RP has access to clear information, informed care, and an effective treatment suited to their form of the condition.
Where funds go
Donations support research focused on non-syndromic retinitis pigmentosa, including work that improves our understanding of the disease and advances potential treatments.
Our approach
RP is not one condition with one cause. Changes in many different genes can lead to RP, and each genetic form may have its own progression, research, and treatment possibilities.
That is why RP Hope organizes information gene by gene. We bring together published research, clinical trials, and clear explanations so patients and families can understand what is known, what is still being studied, and what may be relevant to them.
We also aim to make that information useful to caregivers, clinicians, and researchers working across the RP community.
Board of Directors
- Lyndon Elam
- Tim Geistlinger
- Kevin Unger
- Eric Elam
Tax Filings
RP Hope’s annual filings are available to download.
RP Hope · EIN 86-3745576 · 501(c)(3) nonprofit